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Publication - Dr Gemma Lasseter

    Research participation registers can increase opportunities for patients and the public to participate in health services research

    Citation

    Leach, V, Redwood, S, Lasseter, G, Walther, A, Reid, C, Blazeby, J, Martin, R & Donovan, J, 2016, ‘Research participation registers can increase opportunities for patients and the public to participate in health services research’. Journal of Health Services Research and Policy., pp. 1-5

    Abstract

    Members of the public and patients repeatedly indicate their willingness to take part in research, but current United
    Kingdom research governance involves complex rules about gaining consent. Research participation registers that seek
    consent from participants to be approached about future studies have several potential benefits, including: increased
    research participation across clinical and healthy populations; simplified recruitment to health care research; support for
    people’s autonomy in decision making; and improved efficiency and generalizability of research. These potential benefits
    have to be balanced against ethical and governance considerations. With appropriate processes in place, seeking prospective
    consent from patients and members of the public to be approached about future studies could potentially
    increase public participation in health research without compromising informed consent and other ethical principles.

    Full details in the University publications repository